I just wanted to give a quick update on how Eli is doing and share some pictures of him and his brain.We got out of the ICU on sunday and are relaxing in a room that doesn't have windows on all three sides where you can watch the saddest things you've ever seen in your life. Eli is doing well: eating well (if you count ice cream as good food), walking around a bit, chatting with the doctors and SLEEPING. This kid is very tired, but can you blame him? He's sleeping like a baby. Just like a newborn. He sleeps, wakes up, eats, goes back to sleep.... The first couple of days he was actually even nursing in his sleep, which he hasn't done in well over a year. It was pretty cute. I guess maybe the trauma made him regress back a bit. I know when I get sick I'm a whiny little brat. Anyway, he's not quite the chipper Eli we usually see in the hospital after surgeries, he's just exhausted. He is however, getting better and stronger every day and we know that after such a major surgery it will take him alot longer to get back to his old self.
He has also developed a strange urge to create combinations with his food - he doesn't want red or orange jello, he wants red AND orange jello, together. We asked him the other night if he wanted some soup or some crackers or some jello or some chocolate pudding and he said "I want to dip crackers in pudding." So that's what he had to eat, saltines dipped in pudding.Lastly, here's what Eli's post-surgery MRI looks like. Look mommy there's no tumor! The image on the left is from February, the one on the right is from saturday.
We are set to go home either tomorrow or thursday! Yay!!!
I hope Eli is home now snug in his bed and getting the rest that he needs. I'm so glad to see the tumor is gone and the surgery went well. Speedy recovery to our good friend. With love, from your friends in San Diego...
ReplyDeleteHello,
ReplyDeleteCongratulations on the success of the procedure!!!
I came across your blog and am fascinated by it. I too have a son (6 years old) that was diagnoised with a cranipharyngioma tumor last year (Feb, 27 2009).
We have had ups and downs over the past year. Right now we are in an "up". Although, I always wait for the other shoe to drop.
Reading your posts is helpful. Thank you for sharing such a private story so publicly!
My 3 and a half year old
ReplyDeleteson just had a craniotomy and resection of his craniopharyngioma. We just left the ICU today. We are trying to get his diabetes insipidus under control and hopefully go home in a few days. Fortunately, the pediatric neurosurgeon feels that he was able to completely resect the tumor. Thanks for starting this blog. All the best to Eli.